At “Cure SCG”, our mission is clear: to provide a dynamic and inclusive space for the exchange of ideas, research findings, and advancements in the field of LGMD, particularly focusing on the Sarcoglycanopathy gene. By facilitating collaboration and knowledge-sharing, we strive to propel LGMD research forward and make significant strides towards a cure.
Co-founder
Devoted father and cybersecurity engineer by profession, founded CureSCG and found a deeper purpose to not only help his daughter but also to extend hope and support to all those affected by this life threatening disease. His mission is deeply personal, fueled by love and a steadfast commitment to give his daughter and the over 210,520 individuals affected by LGMD a chance at a brighter future.
Co-founder
A Quality Consultant by profession and a caring mother, Rana co-founded CureSCG with a heartfelt dedication to finding a cure for her daughter, Sara, who has been diagnosed with Limb-Girdle Muscular Dystrophy (LGMD). Fueled by love and determination, Rana tirelessly supports pioneering research and strives to offer hope to all families impacted by this life threatening disease.
Professor, College of Medicine, University of Sharjah, UAE Founder & President, MENA Organization for Rare Diseases, Dubai, UAE Consultant Clinical Genetics at Kanad (Oasis) Hospital (Al Ain), Genesis Healthcare Center (Dubai), University Hospital (Sharjah), and Burjeel Medical City (Abu Dhabi)
MD, MSCI, FAAN Professor and Vice Chair of Research , Director of Center for Inherited Muscle Research (CIMR), George Bliley Research Chair, Virginia Commonwealth University
